Waiting

On Monday, July 28th, Tom and I spent the majority of the day on the phone to family and friends. Our good friends Jeff and Debi were here to help with Zoe and Teddy so that Tom and I could do the physical and emotional work that we needed to.

We would call the NICU periodically to check on Daisy, who seemed to be getting even worse. At some point they put something on her to help her breathe, called a C-Pap. She was being fed through a tube which was inserted into her nose, down her throat to her stomach. Everytime we would call the NICU, I would cry after hearing the report.

I could barely eat. All food tasted, and felt, like cardboard. Monday is the first day that I met Monica, our public health nurse - and my friend. Monica bravely gave us information about support groups and other information for a family suffering from a loss. She shed some tears with us too, which was astonishing, because she had just met us.

I also remember a very touching phone call I had with Dr. Gannon, our children's pediatrician. Dr. Gannon and I discussed comfort care, and what that would mean for Daisy. I was touched with Dr. Gannon's thoughtfulness, and her concern. She told me that we were doing the right thing, that not only did the medical field support our decisions to not prolong Daisy's life if she was trisomy 18, but that her church also supported such a decision. I could tell that Dr. Gannon's heart was with us.

What an outpouring of love and support we were receiving. It was comforting, and it was welcomed. For once in my life, I accepted the help of others. So, for all of you reading this now, please know that your words, your thoughts, your prayers and all the food you brought was and is appreciated.